Walker has spent the last few days learning the art of the knock-knock joke! So next time you call or visit, come armed with your favorite toddler friendly knock-knock joke. Walker will be delighted! Here was the scene yesterday while waking. Charlie had a family party on our bed:
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| Walker made a funny! |
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| Grandma Happy made a funny! |
Charlie Update:
Today, Charlie and I had our first appointment with his geneticist. She saw Charlie in the NICU but her office has not had an opening for a follow-up appointment until now. It was a very informative visit where we discussed Charlie's Craniosynostosis as it relates to his other health issues - mainly the heart and kidney issues. She had a battery of questions about Charlie's family history which ranged from "Are you and your husband blood related" to "How many family members have bad eye sight." It was exhaustive. She has a list of syndromes that Charlie may or may not have and sent us for a blood draw to do further testing. The reason to find out if Charlie has a genetic disorder or syndrome is of course to better plan his care. Forewarned is forearmed!
I thought we had already done this kind of testing in the NICU. She explained that the initial blood tests were to discover whether Charlie had all his chromosomes accounted for - not too many, not too few, etc. Those tests came back fine. She went on to explain that the initial tests can be equated to flying over a city in an airplane so that you can see and account for all the buildings. These new tests will be able to determine if the proper mail has been delivered to each of those buildings. So, we're doing the mailman tests and will have our results sometime around Christmas. Our doctor named quite a few specific syndromes that I will not include here, because I want to discourage everyone from torturing themselves on the Google search engine. I will also stay off the internet and hope for good results come Yuletide.
Charlie has been showing strides in his physical development this past week. For the first time ever, he planted his feet and pushed his body into an erect position. Hard to do when you weigh 17 and a half pounds! His head is still very wobbly, but we continue to work with our physical therapist to help him gain some head control. His lack of head control is troublesome to his doctors but Jack and I figure that he's got bigger fish to fry - like... I don't know... rebuilding neuro-pathways in his brain.
As always, we wait for lab results while soaking up every marvelous moment with our beautiful boys. We love you all and are grateful for your notes and words of support! Thank you!
